Nigerians are being encouraged to back efforts to fight discrimination and promote complete care for Parkinson’s patients in the country.
At the ADPF Centre in Surulere, Lagos, experts appealed for support during the Adewunmi Desalu Parkinson’s Foundation’s second annual symposium.
The symposium, titled “Educating, Engaging, and Empathising: Building a Supportive Ecosystem for Parkinson’s Awareness and Care,” brought together key stakeholders, experts, and advocates to advance dialogue and initiatives for Parkinson’s disease care and awareness in Nigeria.
The symposium is a significant step forward in advancing dialogue and initiatives for Parkinson’s disease care and awareness in Nigeria.
The discussions covered a range of subjects, from advancements in Parkinson’s care to community empowerment and fundraising endeavors.
Panelists stressed the importance of diverse care models, better access to specialized treatments, and creative therapeutic approaches to improve the quality of life for people living with Parkinson’s disease in Nigeria.
The second session focused on involving the community and implementing non-medical actions to empower the Parkinson’s community.
Dr. Oladunni Abiodun, a Consultant Physician/Neurologist representing the Permanent Secretary of the Lagos State Health Service Commission, delivered an informative keynote speech emphasizing the need for collaborative efforts among government agencies, private organizations, and NGOs to enhance Parkinson’s care and support services in Nigeria.
Dr. Abiodun mentioned that the Lagos State government has established the Lagos State Health Scheme, offering insurance for 8,500 naira to enable citizens to access affordable and quality healthcare in general hospitals across the State.
The founder of the Adewunmi Desalu Parkinson’s Foundation, Mrs. Omorinsojo Desalu, shared her vision and dedication to promoting Parkinson’s awareness and care in Nigeria.
She highlighted the foundation’s journey and achievements and called for continued commitment and collaboration to have a lasting impact on the lives of Parkinson’s patients.
In her address, she encouraged Parkinson’s patients and their caregivers, saying, “We hope that your experiences will inspire others to share their stories, ultimately making Nigeria a place that is knowledgeable about Parkinson’s. This will enable early detection and proper guidance for those at risk of the disease.
Mr. Offong Ambah, Chair of the Governing Board, emphasized the importance of fundraising for advancing Parkinson’s research and support initiatives.
Ambah underscored the need for united action and urged stakeholders to contribute to the Adewunmi Desalu Parkinson’s Foundation to make a meaningful impact.
Attendees, including representatives from the World Parkinson’s Coalition and InMotion (Ohio, Texas), conveyed messages of unity and support. Participants highlighted sustained advocacy, increased funding for research, and expanded community-based programs to improve Parkinson’s care nationwide.
The cooperation shown at the symposium highlights the worldwide dedication to progress.
The symposium shared plans for future activities, such as the “Move for PD” awareness walk on June 29th, 2024, and the debut of the documentary “Beyond the Tremors: Living Well with Parkinson’s” on the ADPF YouTube channel.
These activities intend to increase public awareness and encourage understanding of Parkinson’s disease in the community.
Dr. Aderemi Desalu, Chair of the ADPF Advisory Board, expressed thanks to participants, panelists, sponsors, and attendees for their backing and dedication to Parkinson’s advocacy.
Desalu confirmed the foundation’s commitment to cooperation and creativity in enhancing the lives of those impacted by Parkinson’s disease in Nigeria.
The Executive Director of the Adewunmi Desalu Parkinson’s Foundation, Ms. Laura Temituoyo Ede, finished the symposium by showing deep appreciation to all attendees, both physical and virtual, for their active involvement and support throughout the event.
